Coventry midwife wins national award for improving pregnancy care for women with genetic disease

AN ACADEMIC midwife from Coventry University has won a national award for her research on pregnancy in women with a rarely diagnosed genetic condition.

Dr Sally Pezaro received the Royal College of Midwives Partnership Working Award for her work within a team of healthcare professionals developing care and support for pregnant women with Ehlers Danlos hypermobile syndrome (hEDS) and hypermobility spectrum disorders (HSD).

Dr Pezaro said: “I am honored and touched to receive this award on behalf of www.hEDSTogether.com, especially since the other nominations in this category were incredibly strong.

“I really hope this award will give us further opportunities to highlight the needs of pregnant women with hypermobile Ehlers Danlos syndrome (EDS) and hypermobility spectrum disorders (HSD), so that midwives women and other perinatal staff can continue to provide excellent care every day. “

The team undertook a review of the research and evidence on the disease.

They found that about one in 20 pregnancies are affected, more than previously thought.

Armed with this, Sally and her colleagues produced a range of educational materials, including a “maternity tool” for midwives and other health professionals.

These were developed with input from women with hSD / SHD to focus on what mattered most to them.

The resources include a learning module on RCM’s e-learning platform and have received high praise from women and health workers as far away as Australia.

MRC Executive Director Gill Walton said: “Research is so important because it makes care safer and better.

“This is a wonderful example of research doing just that and having a direct and positive impact on the care women receive in our maternity wards and internationally. “

Lisa Bayliss-Pratt, Coventry University Pro-Vice Chancellor for Health and Life Sciences, said: “At Coventry University we are proud of our impactful research and Sally continues to have a positive and direct impact on the care in the midwifery sector thanks to his research.

“Sally is the Midwifery Champion for the Nursing Now Challenge and is leading an exciting new collaborative initiative to improve perceptions and increase the value placed on midwifery globally.

“She is an ambassador for our university, midwifery, research, higher education and RCM and I am delighted to see that her outstanding research has been recognized.

“I look forward to seeing her contribute to future developments and initiatives in higher education and midwifery nationally and internationally. “


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